ActiveAtlas Opportunity Score 72/100
CDC NCBDDD Long-Term Health Outcomes of People Living With Spina Bifida — CDC-RFA-DD-26-0222
FundingComponent A: approximately $300,000-$600,000 per applicant over the 3-year performance period ($100,000-$200,000 per 12-month budget period). Component B: approximately $150,000-$300,000 per applicant over performance ($50,000-$100,000 per 12-month budget period).
DeadlineOctober 26, 2026 at 11:59 PM Eastern Time; optional LOI September 26, 2026.
Last verifiedSeptember 15, 2026
Required next actionEligible specialty clinics should verify current NSBPR or UMPIRE participation and every responsiveness criterion, review the September 17 CDC informational call or recording, and confirm required patient and visit thresholds, clinic or hospital commitment, and the Component B pediatric urology requirement before applying.
Broad Eligibility
Broad statutory eligibility includes public and private entities, nonprofits, for-profits and small businesses, higher education, tribes and independent school districts; however, Component A requires qualifying current NSBPR enrollment/visits and clinic or hospital access/commitment, while Component B requires qualifying UMPIRE participants/visits, pediatric urology capability and clinic or hospital access/commitment.
Atlas Analysis
Strong clinical-data and specialty-clinic relevance. Applicants must already satisfy the component-specific NSBPR or UMPIRE responsiveness criteria, including qualifying patient or visit thresholds, institutional access and commitment, and required clinical expertise. Proposed technology, equipment, consultant, or contractual costs should be tied directly to the funded component and verified against the current federal package.
The Centers for Disease Control and Prevention (CDC), National Center on Birth Defects and Developmental Disabilities, is accepting applications for CDC-RFA-DD-26-0222, a cooperative agreement focused on long-term health outcomes for people living with spina bifida. Applications are due October 26, 2026 at 11:59 PM Eastern Time; an optional letter of intent is due September 26, 2026.
Component A supports longitudinal clinical-data collection through specialized clinics participating in the National Spina Bifida Patient Registry (NSBPR). Component B supports implementation and evaluation of the UMPIRE urology protocol for infants and young children with myelomeningocele. Although the statutory applicant list is broad, the NOFO’s responsiveness requirements sharply narrow realistic applicants to organizations with qualifying existing NSBPR or UMPIRE patients, recent registry/protocol visits, clinical access, and the required institutional commitments and expertise.
There is no required cost share. The controlling NOFO permits reasonable equipment, consultant, supply and contractual costs, but it does not establish telehealth or remote care as a program objective. Applicants should confirm that any proposed technology, data-capture, equipment, consultant, or contractual cost is necessary to the applicable registry or UMPIRE component and supported by the current federal application package. A viable applicant must independently satisfy the NOFO’s existing NSBPR or UMPIRE clinical-population, institutional-capacity, and component-specific responsiveness requirements.
CDC has scheduled an informational call for Thursday, September 17, 2026, from 2:00 to 3:00 PM Eastern Time and states that a recording will be available afterward. Prospective applicants should use the session or recording to confirm programmatic and submission details before finalizing a response.
From Funding to Implementation · School Health Solution
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Dr. Miltie N9+ can support clinician-directed remote exams in school settings, helping care teams move beyond video-only encounters when a funded program calls for stronger pediatric access.
Source verificationOfficial government source · simpler.grants.govAtlas last verified this record September 15, 2026. Always use the funder's current application materials, amendments and portal instructions as the controlling source.View source and application materials ↗
